TubeNet

Chuck(G) wrote:...unless you're into supermarket tabloids...

Chuck(G) wrote:Please, for the sake of simple decency, request that folks contact you off-line. Give the good people an opportunity to talk to you openly with some assurance of confidentiality.

No one needs a forum where a third party trumpets someone else's problems.

..unless you're into supermarket tabloids...

djwesp wrote:a very prominent player speaking out and starting a crusade to address this issue is exactly what we need in my mind.

windshieldbug wrote:

djwesp wrote:a very prominent player speaking out and starting a crusade to address this issue is exactly what we need in my mind.

Bear in mind, however, that it may be very difficult for people to admit openly as long as it has some effect on their livelihood. Let them decide if it is time for them to speak.

djwesp wrote:(side note, the person I mentioned has openly acknowledged and talked about his Dystonia for years)

djwesp wrote:I think I wasn't very clear in the fact that the professor I mentioned has openly discussed his dystonia for years.

Rick Denney wrote:

djwesp wrote:I think I wasn't very clear in the fact that the professor I mentioned has openly discussed his dystonia for years.

Yes, he has. I attended his master class at the Army conference several years ago in which he discussed it quite fully.

With any disease, however, people become sensitive either as sufferers or as their friends. The way to address this if you wish to write a paper is to talk with the professor you mentioned, and have him connect you with others, who will connect you with still others, and so on. If you ensure their anonymity by referring to them cryptically in your paper, then your paper can perhaps help shed more light on the disease.

For example, if as an engineer my livelihood was affected by, say, a stroke, then I might be very careful about how I presented that to people. The degree to which I'm affected may be overstated if my situation was mentioned publicly, and that might prevent me from continuing to do the things that I CAN do. As a professional, my fitness for any given job would be judged by myself and my clients/employer, not by public discussion, and certainly not by the Tubenet Freak Jury.

That's why medical research is so careful about anonymity protocols and so forth. You might benefit from reading up in the medical literature how they usually handle the discovery of willing subjects for study. There might be techniques that would help you make good contacts while still maintaining confidentiality and good ethics.

Rick "who has not had a stroke--no, really" Denney

djwesp wrote:It is hard to tell since you quoted me if you are addressing me or the person actually writing the paper.

Rick Denney wrote:Tubenet is more serial than email, but it's still not always serial

windshieldbug wrote:Oh man, I was hoping for cereal multiprocessing!

Doc wrote:BEGIN RANT:
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Doc

Doc wrote:BEGIN RANT:

What a bunch of over-sensitive, pansy-assed creampuffs. It's not lot we're talking about AIDS or what whores they had to screw to get it. Focal disfonia IS NOT A MORAL/ETHICAL/POLITICAL/RELIGIOUS OR OTHERWISE SENSITIVE ISSUE. It is a legitimate discussion in our small community. If someone doesn't want to talk about their problem, that's ok. No one is asking that of them. The idea that they need privacy because somehow this problem is an unbelievably embarassing condition indicates that the player has done something wrong, agregious. Horse hockey.

Sure, we should respect someone's privacy, but we don't need to be accused of having some kind of tabloid discussion if we want to learn more about it. As tuba players, we have a lot invested in our favorite players. We are a small community, after all. When one of our favorite all-stars has a problem, it naturally concerns us, hence these threads. What we talk about publicly that is public information, or has become public information (not rumor or speculation), is free game. Tight lips and closed minds don't do much here to bring about understanding or solutions. I don't see rumor, speculation, or slander in what's happening here. Sean can still lock the thread, delete it, ban us, etc. - it's his site - but that won't help.

There is nothing taboo about FD, so you lightweights might think about getting a grip. The same taboo-mentality keeps victims from talking about getting raped, even though they are blameless and did nothing wrong, or did nothing to bring it about. It keeps victims from coming forward, people from being helped, and rapists from going to prison, consequently allowing rapists to acquire new victims. That's a taboo that any moron knows shouldn't exist, yet people allow it to continue. Don't let that same ridiculous mentality keep us from a legitimate discussion. We don't have to talk **** about someone (no one has), but there is nothing that should keep us from discussing FD, or mentioning players who have been affected by this condition. MENTIONING AFFECTED PLAYERS DOES NOT CROSS ANY MORAL/ETHICAL LINE, and the mere mention of someone's name does not violate their privacy WHATSOEVER! They are sensitive because all this talk could hurt their career? BS. Their careers are already hurt because of the condition, not the discussion about it. PFFT! If you're not sure about a player/don't have facts/no public info, you have no ground on which to stand, and the TNFJ will take care of you. Otherwise, there ought to be a free exchange.

I guess we had better not ever mention any other people who might have some other condition or disease, or had something bad in life happen to them, got angry, stubbed their toe, looked at someone funny, ate with a salad fork instead of a dinner fork, dialed a wrong number, or thought tomatoes were vegetables, since that discussion might, in and of itself, harm them in some unidentifiable, indescribable way.

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Doc