Posted: Sun Apr 04, 2004 9:38 am
Personally, I would say in the long run, things should be OK. Trumpet playing (tuba too) is relatively high volume, low pressure and shouldn't be a problem. Just tell her not to take up the oboe, glass blowing, or scuba diving. I think perhaps since your lung collapse, the advice for activities is a little more liberal. I personally don't believe the airway pressures involved in trumpet playing, or tuba playing for that matter, should be a big issue, but I'd still use caution and be wary of any symptoms that develop.
Seriously, since you and your daughter (hers at a young age) both had a spontaneous pneumothorax, there is likely something genetic here: alpha-1-antitrypsin deficiency, Marfan syndrome, Ehlers-Danlos syndrome, or familial spontaneous pneumothorax. The alpha-1-antitrypsin deficiency is probably the most common of these. Some things to consider to help with the long term: avoiding smoking; good lung health through regular exercise; getting flu shots, pneumonia vaccines to avoid lung infections, etc.
I would highly recommend going to talk with a pulmonologist or thoracic surgeon about options here. If she never has another pnemothorax, then great. But I'd be careful of high pressure things: oboe, glass blowing, plane rides, scuba diving. If she has another one, then assuming it's the alpha-1-antitrypsin deficiency, there are surgical options to resect the blebs that rupture and cause lung collapse. With new minimally invasive surgical techniques, this is becoming a better option for these people.
Here is a resource that I found. I hope it helps.
The Spontaneous Pnuemothorax Patient Network
Seriously, since you and your daughter (hers at a young age) both had a spontaneous pneumothorax, there is likely something genetic here: alpha-1-antitrypsin deficiency, Marfan syndrome, Ehlers-Danlos syndrome, or familial spontaneous pneumothorax. The alpha-1-antitrypsin deficiency is probably the most common of these. Some things to consider to help with the long term: avoiding smoking; good lung health through regular exercise; getting flu shots, pneumonia vaccines to avoid lung infections, etc.
I would highly recommend going to talk with a pulmonologist or thoracic surgeon about options here. If she never has another pnemothorax, then great. But I'd be careful of high pressure things: oboe, glass blowing, plane rides, scuba diving. If she has another one, then assuming it's the alpha-1-antitrypsin deficiency, there are surgical options to resect the blebs that rupture and cause lung collapse. With new minimally invasive surgical techniques, this is becoming a better option for these people.
Here is a resource that I found. I hope it helps.
The Spontaneous Pnuemothorax Patient Network