Chuck(G) wrote:At some point, we need to get realistic about extreme treatments for the elderly. No buckets of meds and weekly trips to the doctor for me when I get to that point. I want to die not of cancer, or Alzheimer's, or cardio-vascular failure, but of "old age", thank you.
The question is, which "we" are we talking about?
The problem, it seems to me, is that we seek out that competition with death ourselves. It was not an expectation your grandfather had, but it clearly was for your father and father-in-law.
My grandmother died in the 80's at age 70, after having lived in a nursing home for ten years following a severe stroke. In the end, her kidneys failed and it was a choice (left to my mother--my grandmother was in a coma by that time) to let her go or to face daily dialysis and other organ failures for a few more months. My mother chose well, in my opinion, but the guilt of that choice still haunted her for many years.
I don't want some Medicare bureaucrat, or even some doctor, making that choice. I want whoever makes that choice to be haunted by it--only then will they exercise the appropriate level of care.
My mother-in-law died three years ago of lung cancer. She was in her late 60's--not really old enough to die of old age. At first, there was the expectation that the cancer could be beaten, giving her some years more of relatively vigorous life. At some point, though, it becomes clear that the treatment to a cure has become treatment for symptoms to relieve pain and suffering while waiting for the inevitable. Thus, she decided to pursue the chemotherapy and radiation treatments the first time around, but passed on them the second time around. The point is important: It was her choice both times.
I hope I have the courage to let it go when the time comes. I think I will, but I'm no more ready to be done with life than I was 30 years ago, and 30 years from now I still might not be ready. I'll have to wait and see.
My discomfort when this subject comes up is the whole notion of this being a matter of government policy rather than individual choice. If the Medicare system were to set a policy of not providing additional coverage for those who are not expected to live, then surely those who might have been cured will be cut off and some will die anyway. There is no possibility of making that determination with any degree of precision, and thus there is no possibility of making it with any degree of humanity. Only the person can make that choice, or those loved ones who are entrusted with that person's care.
But we create the monster when we establish a government program to pay for it all. It is not all the government's fault, however. People these days have increasingly believed that they should be protected from all of life's mishaps and tragedies. That leads them to sue doctors for not doing everything, and that in turn prevents doctors from being open and honest about the prognosis.
During my mother-in-law's illness, I was continually amazed by how reluctant the doctors were to speak plainly. She would insist, and then the doctor would jump from reticence to brutality in one leap. I came away from that experience with even deeper disrespect for the medical profession than I had before, and that's saying a lot. But they obfuscate because the consequences of speaking plainly can often be grossly out of proportion, and the unrealistic expectations people have of doctors makes them aggressive in pursuing those consequences.
Doctor to patient: "Mr. Fryburger, we found a shadow on your lung X-ray, and we don't think it's anything but we'd like to do a biopsy just in case...Mr. Fryburger, the shadow seems to be a metastasizing tumor that is starting to block your trachea, and I would like you visit Dr. Oncologist to discuss your treatment...Mr. Fryburger, I'm prescribing a course of chemotherapy and radiation--both of which have made great strides in recent years both in terms of effectiveness and side effects...Mr. Fryburger, we the tumor has declines significantly, but we can't do more right now until we get that little issue of being neutropenic under control...Mr. Fryburger, as soon as we deal with that pneumonia, we'll consider our options...Well, Mr. Fryburger, if you insist on my frankest assessment, you are dying and it could be tomorrow or next month--whatever."
Consider the alternative: "Mr. Fryburger, I see a tumor on your X-ray, and the biopsy revealed it to be an advanced malignancy that is probably beyond our ability to treat. One round of chemotherapy and radiation will improve your prognosis and give you another year, though the treatment will cause you to be sick for much of it. It might give you some time to be with your loved ones and make any arrangements that are necessary. Things may go well and we might see the possibility of a cure, but I would not expect that much will be gained by anticipating anything beyond that single round of treatment..."
The second approach is no more brutal than the first, but it does give the person the tools needed to make a rational decision. I heard every one of the sentences in the first approach made to my mother-in-law. I never heard anything like the second approach, and my mother-in-law never really knew the possibilities when asked to make a decision about treatment. The doctor knew everything he needed to to follow the second approach, because he told it all to a nurse who is a friend of ours (though the doc didn't know it) and who passed it along to us after the funeral.
Rick "who hates the pusillanimity of the medical profession, and the greed of people and their lawyers who encourage it" Denney